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Titre :
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Lost in translation? How adults living with Cystic Fibrosis understand treatment recommendations from their healthcare providers, and the impact on adherence to therapy (2016)
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Auteurs :
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PAKAHALE S.
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Type de document :
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Article : texte imprimé
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Dans :
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Patient Education and Counseling (Vol. 99 n° 8, Août 2016)
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Article en page(s) :
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pp.1319-1324
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Note générale :
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biblio.
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Langues :
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Anglais
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Catégories :
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COMMUNICATION
EDUCATION DU PATIENT
OBSERVANCE THERAPEUTIQUE
MALADIE CHRONIQUE
LANGUE PARLEE
MUCOVISCIDOSE
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Mots-clés :
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COMMUNICATION
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EDUCATION DU PATIENT
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OBSERVANCE THERAPEUTIQUE
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MALADIE CHRONIQUE
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LANGUE PARLEE
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MUCOVISCIDOSE
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LITTERATIE EN SANTE
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Résumé :
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Objective This study builds on the limited research documenting Cystic Fibrosis (CF) patients’ understanding of treatment recommendations and how this may impact adherence to therapy. Methods We surveyed adults with CF and their healthcare professional (HCP) to capture treatment recommendations provided by the HCP, and patients’ knowledge, and frequency of performance, of these recommendations. We classified CF participants’ understanding of treatment recommendations (correct/incorrect) as compared to the actual recommendations made by the HCP. We computed CF participants’ adherence in relation to HCP treatment recommendations and to their own understanding of treatment recommendations (adherent/non-adherent). Results Complete HCP and patient data were available for 42 participants. The recommended treatment frequency was correctly understood by 0%-87.8% of CF participants. Adherence to HCP treatment recommendations ranged from 0 to 68.3% (mean 45.4% ± 21.5), and rates were low (
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Note de contenu :
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SCIENTIFIQUE
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